We're so glad you're here. Scroll down to find some of the Crohn's conversations happening in our community. The more, the merrier—jump in anytime!
Curious to hear how your #UlcerativeColitis or #CrohnsDisease has affected how often you engage in self-care activities.
#InflammatoryBowelDiseaseIBD #ChronicIllness #ChronicPain #Anxiety #DistractMe #CheckInWithMe #MentalHealth
1. It’s full of other people with connections to IBD.
2. It’s a safe forum to ask any and all IBD questions.
3. It’s a way to connect with others on the Mighty community.
4. I’m one of the group leaders (living with #UlcerativeColitis ), and I’m pretty cool.
5. We want to normalize talking about poop.
6. We do Q&As with partners like Girls with Guts.
7. It’s a small but “Mighty” community that we want to grow.
8. It’s supportive.
9. Why not?
10. Do it today!
You can search the groups to join. #CrohnsDisease #InflammatoryBowelDiseaseIBD #ChronicIllness #IrritableBowelSyndromeIBS
What is something you wish people knew about living with Crohn's?
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A bit anxious as my day was very stressful because I had to take care of things medically related which exhausted me.
Advocating for my health is always a bit hard for me which is to be expected for my age I believe while I try and figure out what is wrong with me and who I need to see.
Which unfortunately is a difficult task.
Having to make appointments for multiple doctors and having to go and see new ones for a list of health issues and symptoms that never gets answered because there is nothing they can visibly see which is another pain of having an invisible illness.
Symptoms that don’t make sense to most doctors so I have to go to different doctors for them to also not know what is going on.
And then I wait a month only to have to wait for another more.
And then I have to get bloodwork done and/or imaging via x-ray or ultrasound.
Particularly with my kidney problem where I have too much calcium but with perfectly functioning kidneys that actually work better than most.
And I find it very depressing and overwhelming.
I can’t do anything fun because all the money goes to the doctor.
But then again I probably wouldn’t have had fun anyway due to the pain and chronic illness.
I’m not sure, this all just feels hopeless and a lost cause.
#MentalHealth #GeneralizedAnxietyDisorder #MajorDepressiveDisorder #ChronicIllness #ChronicPain #CrohnsDisease #InflammatoryBowelDiseaseIBD #Undiagnosed